Hello, my name is Jono.
I'm a 26 years old man who has cerebral palsy and I'm wheelchair bound. I also use a tablet to communicate. In my life I have had my challenges and I will keep to have more in the future. Even I though I've had my challenges I live a full life. I have won a poker tournament internationally, travelled and been on a cruise. I have been working for over 18 months at Marillac as administration assistant. Recently I have moved out of home and moved into my own unit.
Now I want to help other people. Just because I've had challenges doesn’t mean I know what you are going through. I understand that every situation is different for everyone even if they are in similar circumstances. However, by telling you my story I hope you find something that helps you or your situation.
I love my parents and dearly and value the support they give me, but moving out of home has been best decision I've ever made. I have made a few good and a fe bad decisions in my life but by the far this has been my best. Even though it has only been a short time, I have became more independent and a better man. The move has given me more independence .
I am a very determined person and I won't let you stop me reaching my goals regardless who you are. I'm like a bull being shown a red flag. If you say I cant do something it just makes me more determined to prove you wrong. In my life I have had so many people doubt me, and I continue to have people doubt me. But I know what I want in life.
I want to live an independent, loving and peaceful life. I'm easy going and I have lots of fun despite my serious determination.
My hobbies are poker, computers especially football manager, playstation 4 and chess. I've never really been to clubs and pubs but over the coming months I am going to try to hit clubs and pubs with some regularity. Also I love to watch sports. I am over AFL, I am not into it at all, especially now that I have found ice hockey. "Go Melbourne mustangs!"
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A moment that defined my outlook on life.
In 2014 I watched a family friend die. He went to visit a doctor because he was having headaches and they found he had cancer. After he found out he went downhill fast and within 6 months he was gone.
He was only 39, fit, never smoked and had a wife and 2 kids
I had always had a positive outlook, visiting the children's hospital and having my parents say "people are better and worse off than you". But after watching Stuart die, I changed my attitude for the better. I decided not to worry about the things I don’t have. Even though I want a new wheelchair I don't dwell on it. It will happen one day so I no longer worry about the small things.
Recently I was leaving for work at 10. I needed help to attach my tablet around my neck which takes 2 seconds. I texted my carer that I needed help but they took 30 minutes to respond because their phone was on silent. Even though I was a bit annoyed I didn’t get angry.
I looked at the funny way that I waited 30 minutes for 2 seconds help.
I always try to wake up happy. I usually get up around 7:30am and I'm nearly always happy and joking around. It's sad that a good person had to die for me to become a better person and take on a better attitude to life.
Before Stuart died I wasn’t a bad person but I was selfish person. Now I try to help people when I can. I had an old iPad that I wasn’t using. People were trying to get me to sell it, but I asked my OT if they knew a disabled person that could use it. They knew a child who's mum was saving to get one. So I gave them mine. They use the iPad for school work. From time to time I get videos of them using the iPad. It's great feeling. I courage you to please donate your old stuff especially devices to disabled people cant afford them and share the joy that it brings me.